Monday, August 29, 2011

Tomorrow is dose up day!!!


Tomorrow Megan will dose up from 5ml of the 5mg/ml solution to 10mg of the 5mg/ml solution. Just two more weeks of Kool-aid liquid egg and we move onto the powder egg. Megan has continued to remain reaction free, yippee yeah!!!! I am so amazed at how well she is doing.

Friday, August 26, 2011

A good week

On Tuesday Megan was bumped up from the 1mg/ml solution to the 5mg/ml solution. This week she is getting 5ml of the 5mg/ml egg liquid. Only two more week and she moves to the egg powder!!! Megan has remained reaction free. Once she got past the first two weeks of her body wondering "what in the heck we were doing" she has been fine.

Monday, August 22, 2011

Another week has come to an end

Megan has made it though another week reaction free!!!! Tomorrow she will move up to the 5mg/ml egg liquid. Weekly appointments are a bit of a hassle but are so worth the end result.

Friday, August 19, 2011

Kool-aid egg is becoming not so COOL anymore


Megan is getting really tired of drinking Kool-aid egg. We normally don't do Kool-aid in our house. We are more of a 100% juice kind of family. It is a good thing that after this week she only has 3 more weeks of Kool-aid egg then we can move onto mixing it with a solid substance.

Wednesday, August 17, 2011

This is one of the reasons that I felt so passionate about sharing Megan's story

This is a quote from a mother in response to my blog.

"I just happened upon this post & read your blog of the experience. I'm so happy for you guys! And I'm jealous that you have a doctor who's willing to put newer research into practice. Thank you for contributing to the body of knowledge so that eventually it can trickle down to areas like ours where doctors are so behind the times. My son will be 5 this winter. He's never had an IOFC for egg, and we hope he will soon. If he fails it (he's RAST & SPT positive but has never ingested it except recently was OK with baked-in-egg), I would love to be able to do oral immunotherapy with him. Go Megan!!"

Tuesday, August 16, 2011

Dose up day

Today Megan dosed up from 15ml to 20 ml of the 1ml/mg solution. For those of you interested in exactly how much egg that is, it is 16.7mg of 1mg/ml solution or 0.39% of an egg. One egg is equivalent to 4,350mg. Next week she will transition to the 5ml/mg solution.

Monday, August 15, 2011

Desensitization and school

On this issue we are not going to have much of a problem. Dr. Wasserman believes that due to Megan's reactions in the past she is better off staying home this year to homeschool. Having Megan at home will relieve any issues with possible reactions that could occur in school not to mention major mommy ANXIETY. I am hoping that by next year school will not be an issue nor a worry. Our goal is to finish egg and go right into peanut. If all goes well she will have graduated from both egg and peanut by the time she is to start 1st grade!!! From chatting with other moms that have kids in school desensitization becomes somewhat of a juggling act with regards to morning dosing, the no activity for 2 hour rule, and weekly appointments. It can be done though and many do it and do it well.