Tuesday, August 9, 2011

Look, look, look....

Today instead of getting a whimpy 12ml syringe we got a 20ml syringe. Silly to most but to my mama brain it is grounds for a happy dance. It is amazing how far we have come in such a short amount of time.

Today is dose up day

Today Megan had her weekly appointment for a dose increase. Megan has had a no reaction week again!!! Today Megan went from 10ml of the 1mg/ml to 15ml of the 1mg/ml. Today daddy showed up during our one hour wait. Megan was excited that he was there to help pass the time. If all goes well next week Megan will move to 20mg of the lmg/ml solution. After that point she will move to the 5mg/ml solution!!!

Friday, August 5, 2011

Oh how emotions change

When Megan first began her egg desensitization I was full of fear, anxiety, and even a sense of questioning myself in this desision. I often asked myself, "Am I seriously giving my child egg, a food, that could potentially kill her". Now a month into the process dosing her with her egg has become no different in my mind than giving her the daily medications that she needs. There is no longer the negative feelings attached to the dosing. On the other hand, I am excited as we get one step closer to gaining egg as a safe food. Megan has no anxiety or fear about taking her egg dose. I am so very grateful and thankful to Dr. Wasserman for this opportunity to drastically change Megan's life for the better.

Wednesday, August 3, 2011

Purple egg week


This week Megan has her egg powder mixed with grape Kool-aid. No Megan, egg does not taste like grape Kool-aid. We are now 10mg/ml and next week she will jump to 15mg/ml. Desensitization = HOPE

Tuesday, August 2, 2011

Egg~citing


Megan is now one month into her desensitization. Patiently waiting for her weekly exam for her dose increase.

EXCITING NEWS!!!!

Today Megan had her dose increase. I have been wondering and curious if it would be possible to be able to have eggs in the house and cook them before the full desensitization process was over. Megan is both contact and airborne reactive to eggs. Well, drumroll........the answer is YES!!!!!!! I was shocked and very excited when I was told that this should be possible in about a MONTH. She won't be able to eat them of course but by that time she should be at a dose with the egg that she should not be contact and airborne reactive anymore. Lets just say that everyone in the house is doing the happy dance!!! Never did I think over 4 years ago when Megan was first diagnosed that we would be where we are today. I am so incredibly thankful for breakthroughs in medicine especially when it potentially can change one's life in such a personal way. By the way, Megan did great today with her dose increase. She went from 6ml's to 10ml's!!

Monday, August 1, 2011

A reaction free week!!!

Megan is doing great. I am so thrilled and excited with how well she is doing. Though we are a long way off from the end of this process I am beginning to see a very faint light at the end of the tunnel and it is so EXCITING!!! We are all beginning to talk about how wonderful it will be to have eggs back in the house, at least those that remember having them. It has been over 4 years since our fridge has housed an egg. Quiche, omelets, scrambled eggs, over easy egg, boiled eggs, baking with eggs, dumplings, potato salad, custard, homemade pudding, and decorating Easter eggs.